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new to the world of Autism "alberta,Canada" Posted By: vicki
Posted On: 04/22/2008
My son will be 4 in june and we are recently diagnosed this last month with ASD. Everyone says time is a factor with these children. Well they all said once you get diagnosed things will get easier , not for me, Small town NO services it is a waiting game. Now knowing what is wrong the waiting game is killing me and not getting my son any farther ahead.. Anyone else in the same boat...Need ideas
       
mercurymom wrote this reply on 04/22/2008
Hi, I too live in an area with no services. You don't wait for them...you provide them yourself. What I mean by that is you educate yourself, go to training classes, or hire in people to help train you..and read..read..read all you can on the subject. I strongly suggest looking into both floortime and RDI as both are parent lead programs. YOU CAN DO THIS! you can get books and test and track your son's skills, and what is working and what is not. I am also very bio-med driven and have to most that on my own as well..again..you can. It's not easy..but today with the web and endless books, it's a differnt world from where it was 20 years ago. Good luck..ask questions and run with this. Oh one more tip...Youtube has many parents who share programs and how to do them..it's FREE..just log on and search for RDI and see what all you can find.http://www.rdiconnect.comwww.floortime.orgwww.generationrescue.org

shannonj wrote this reply on 04/22/2008
I'm sorry that you are having to wait for services to kick in. That is very stressful and most of us here have experienced that wait as well. When my son was diagnosed 10 years ago, there was a belief that the years before age five were the most critical and that if a parent wanted to give their child a chance at a normal life, they had to push services and treatments to the very max during that time frame. What I can tell you now is better news that I was given. Science has now proven that the brains of these children continue to develop and grow even into adulthood. We don't have to pack every skill into the first few years of their life anymore. Not that early intervention is not important, but that you don't have to feel like you are failing your child if you can't fill every second of their day with some therapy. On the contrary, just having the time to get to know our children, to show them acceptance and to become their voice by learning their unique needs is a wonderful way to spend your time waiting for services...

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