FoggyRock General Forum

I agree with you Mom...I feel the same way. I also disagree with the word recover, I think it leads to false information and false hope. I personally prefer the word Progress...because no matter what therapy you try all of our children make some progress, some more than others....but I think the word recover is misleading and leads people to believe that its curable, and its not.
I'm happy that her son has made all the progress he has made...but I know alot of parents that would love to have the same results. Who have tried the Diet and everything, they can for their child, with less than positive results. Amom who has done the Diet with her child for years...and that child is still very much locked in his own world and still nonverbal.
Dont get me wrong...I'm not bashing any type of therapy...because we all know...one size doesnt fit all, and what works with one child, may not work for another...but unfortunately thats not the message that really gets accrossed to the General Public.
They hear the words they want to hear...Recover and think crisis solved.

I agree...Temple Grandlin is Amazing, and is someone that gives us alot of hope for our children.  I can think of a few others that come to mind....We always have Hope.


One the other hand, I will say, Jenny has been successful in getting peoples attention...and for that I am grateful.

I feel she leaves out the fact that she has the money to do numerous things for her son that many may not. She probably has the popularity to make people do what she wants too. It's unrealistic to say all can do everything she's done and it's also unfair to say we're not good parents if we can't afford it all.

i do not like her at all i wish someone would tell her to shut up
autism is not curble she talk aboyut it like it cancer .insted of a birth defect .if her son is cure he never was autisc in the first place .if he not it proubly why she not showing off her so call cure son.she only spreading more ingorents an gibving new parents fause hope .there are alot of us like me who werent hf as a child but becuse are parent got what ever therphy were out bthere anb work with us at home we are now hf or as an at times may pass for nt .but i can tell you even though i can do alot of things im still autisc an ld .if a child end up off the asd .then the child never had autism to begin with .she proubly upset to have a child that not perfect to fit her perfect imang .i no pewople who have seen her at connfernce she low class loud and full of her self she like to swaer alot .i think she should stick to what she no .playboy .acting and being aboniucs she not someone i am proud of to respenc us at all

if her son is cure he never was autisc in the first place

I think that is a VERY good point. I am disappointed in the fact that I just don't feel she is saying anything the right way....and by the looks of the comments I'm right on the money as far as that's concerned.

i saw her on the cover og us mag with my mom shge with her son .my mom say he still looks autisc an once he was on tv with he stard tio hand flap she put his hand down qucik .that not recoved as there is no such thing .unless your taking about an illines an even then it rare .you can over come learn coping skills an stuff to wear it min but even when psrents think there kids r so hf no one can tell .they find out people stiull can an it not fair to do it to the kids

There is still so much to learn about autism.  And because autism is a list of symptoms, not a set of biomedical markers, there are probably many different forms of autism.  And perhaps, some forms are treatable and managed with diet and supplements and/or medications while others are more permanent and lifelong.  Hopefully, in the future, scientists will identify these different subtypes and parents will be able to address their child's individual needs appropriately.  In the meantime, I think we all need to just be understanding of each other, and recognize that we are all doing the best that we can do.  Hopefully, Jenny will learn a little tact and maybe gain some understanding about other individuals on the spectrum who are on a different journey.  She needs to be recognize that there are amazing individuals on the spectrum and their presence in our lives is a gift......

Last edited by shannonj (2008-10-19 17:29:27)

i worry about parent who may flow her advice but not geting good or rihght dr and the child is harm we heard about kids been killed vby these treamts .shre act like only her way works an it not smart for her to give out medical advice is she prepaird to be sue if a parent try something she did and it gose wrong an the child is harm or dies

even at autism coinnfernces it all about her an her books an she like to swear alot .she is annoying im sure in gtime other will get sick of her .it amazing my pateernt found help for me to become hf when there wasnt all this help an as much therphys an so on as now .she acts like she invetd all these things an most parents cant aford alkl the things she dose .

I have to agree with the posters about not thinking too much about Jenny... anymore.  I did read her first book, and was very glad to have a celebrity so much in the public eye bringing autism to light.  But... it kind of stopped there.  I cannot stand to see her rudeness on any talkshow.  She never gives the other side a chance to speak completely even when the host designates that time as belonging to another guest on the show.  I would only go on a show with her if they agreed to gag her when it is my turn to speak, offer input, opinion, etc...  Now that being said if I was rich, popular, famous, all the above... I have no doubt I would do everything in my power to get my son the best possible help and therapies.  As for her child being healed... well I do no believe there is a mainstream cure, and the cases of being cured of autism are very very very very far and few between.  I believe she might have found a diet, and therapy program that works for her son, but without that ...  well that is not a cure, but a lifestyle to accommodate the condition (which do not get me wrong, can be a very great, positive, and wonderful thing).  And while she may be easy on the eyes....  I can stand to listen or even watch her when she is on tv.  Glad she is bringing awareness, but her beliefs are so narrow, sometimes I fear she is bringing the wrong publicity, and her attitude on camera, just makes me shudder...uuuuuuuuuuu

I agree with the majority here...so I wont beat a Dead Horse.
But Shannon has also brought up a very REAL and SERIOUS PROBLEM,
Now facing many of our Children....
GROWING UP and NO WHERE TO GO!!!!
I have to admit as my son is now getting ready for transistion in jr. high....I am more and more concerned. Up until now, it has been a battle to get medical treatment and a proper education....but I also know parents who's child has now aged out of School....and they are struggling to find Adult Programs and Proper Medical Care and treatment.
Like Shannon Said...Our Kids arent going away...and we have a big PROBLEM on our hands.....Just getting our kids through school isnt enough.
And Just trying to Recover...Still dont like that word......ISNT ENOUGH!!!
So I think we really need to look at what we can do for our Adult Population....and transitioning.
Alot of our kids right now are ending up sitting at home because there arent any programs after High School...or they are being placed in Institutions.

I found this link on AbcNews.com..  It is very interesting and discusses a program for young adults with autism transitioning to college....
http://abcnews.go.com/Health/story?id=6 … amp;page=1

Thought it might be of some interest to this discussion.

Parenting is the toughest job in the world. Moms are particularly vulnerable to the opinions and comments of others, especially those from other moms. We women can be really intolerant, opinionated and just plain difficult with each other. When we step back and try to realize that not all of us are created "equal" in the sense that we each have our own genes, environmental upbringing, factoring in educational level, married life or single parent life, there is no "One-size-fits-all" rule of thumb on how to parent, especially an autistic child. I have found my greatest source of information from reading book after book after book, articles and websites. You have to throw out what doesn't make sense to you and keep what does. Some organizations that sprouted up as autism became more pronounced in the consciousness of our nation's parents maybe got started out for the right reason and then somewhere lost track of their vision due to greed for power or money or the lime light. Who knows? All I know is that I must educate myself first before I can help my child, his teachers and the school system that teaches him. The rest I leave to God and God alone. Between Him and me, we work out the nitty, gritty stuff that no one else gets about me and my son. The frustrations, tears, anger, screaming and so on . . . whether Jenny McCarthy believes one way or another will have no bearing on the decisions I make for my son. She has her experience and I have mine. Yes, I hear her comments from time to time or read a headline...but I don't dwell on it. That's her experience. NOT MINE! Every child is different. And as parents who know our children well. I think we each pretty much know the answer to the questions - Is there a cure for autism? Is autism a biomedical condition? A psychiatric condition? A disease caused by vaccines? You'll find the answer you need. It's deep within you.