FoggyRock General Forum

My son is 16 and he has had 8 treatments but it was about 7 years ago. I went into it for speech. I wanted to increase his speech ~ ~ that didn't happen BUT a wonderful thing did happen - he began to have b/m's everyday. This used to be a huge issue here. He stayed constiipated all the time before and even though it's been that many years ago I still see the results. I am not sure if 8 treatments were needed. I did them every 2 months and only stopped because it was $1,000.00 per treatment and I didn't get the speech not even a few words. but for the behavior issues that went along with the constipaion issues I would say try it.. I think Chad got a lot from it.

Our son had secretin when he was 5. It was qute a trick back then (9 years ago) to obtain it. He had only 1 IV as part of an endoscopy. For the first few weeks, we observed an increased amount of hyperactivity. However, his stools were formed and he went from "floaters" to "sinkers". (Yes, in my house we only use medical terminology). After those few weeks, we observed some minor gains, Abour 5 weeks after that his preschool teacher called an IEP b/c he met all but one of his goals. These were very basic goals, but he'd had the same goals for 3 years! It was cause for celebration. Otherwise, Gastrocrom and GFCF diet have been the most helpful in helping to calm our son's angry gut. Jane

We just moved to transdermal secretin last week. The peeks and valleys of the IV, plus the office visit to our DAN was becoming unmanageable. He would get his gut on track and then we'd see it start to fall apart and have to get back to the office and then spend two weeks getting back in shape...etc...etc...
So we went TD and worried if it would work - within two days we could see the difference. Not much difference in price but totally worth it to be consistent with treatment. he doesn't like the cream (it's cold and may burn a little) so I put in on after he goes to bed at night and he deosn't even stir, let alone wake up. I'm just so impressed with it and happy to find something help his sore little tummy.

Can't comment on secretin as we only did one infusion years ago, but I can tell you that my son's stools have never been so lovely (in a very GI way) since we started on a combination of Trienza and No-Fenol enzymes from Houstons.  I based those two choices on the trial and error and also on the particular foods that my son eats.  He is SCD and so for him, we have to work hard to digest all the plant-based foods.  Finally, he is digesting food, feeling full and satiated after meals and not raiding my cabinets all the time..

My friend is starting it this week (transdermal).  Her DAN said Oxytocin and Secretin work better together (given seperately).  We have used Oxytocin but not Secretin.

Mickie will start oral Secretin soon. I think is a definitely a candidate for it. I hope to gains, but only time will tell.

I'm curious, how do you all afford this? My son is on Medicaid, and as far as I know, they do not pay for Secretin.