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#1 2008-01-26 16:22:30

tori
New member
Posts: 3

hair twisting

My 3 year old twists, and pulls out her hair then chews on it. She does this so much she has only about 1/2 as much as her identical twin. Is this a stim? Anyone seen this before?

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#2 2008-01-26 22:08:49

sensational
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Posts: 3

Re: hair twisting

I guess anything can be a stim. The Boy could care less about his hair, but he loves playing with mine. Because it doesn't go on for hours, I figure it's love, or just typical toddler exploration, not stimming.

His twin sister (NT, with some mild sensory issues), however, does a lot of twisting for comfort when she's falling asleep, drinking, eating, or waking up.

I used to twist and eat, and I have a serious hair... thing. I love love love love love my hair being played with, pulled (in chunks, not one by one! Although I did that too when I was young), etc. Although I'm not on the spectrum, I do have my own sensory issues that come pretty close to SPD, so it may have been stimming when I was young.

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#3 2008-01-27 18:05:38

Wyndie
Member
Posts: 38

Re: hair twisting

My middle child had a hair thing for years.  It was so constant, I got to where I didn't even notice it until someone else would mention it.  She doesn't do it anymore, but we have done much biomedical for her and I can't really say when that went  away.  I'm pretty sure it was after chelation.  I mean, she still loves hair, but it's no longer a stim.

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#4 2008-02-02 21:36:01

Christi520
New member
Posts: 1

Re: hair twisting

My daughter pulled ALL her hair out one strand at a time...all during the course of us trying to figure out what the heck was going on.  After starting early intervention (at 2 1/2 yrs old), and getting her on some very basic bio-med supplements her hair started growing back and she left it alone.  It is a stim.  We noticed that when she started losing her baby teeth that she started pulling again. Luckily she only thinned out one small area, and then the tooth came out, and she didn't do it again.  She still loves to have her head rubbed from time to time, or to play with my hair.  We keep her hair short now and she leaves it alone.

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#5 2008-02-03 08:54:26

fridgudare
New member
Posts: 2

Re: hair twisting

When my non-ASD but dyspraxic daughter with GI issues did this when she was younger it was always gut related.  She pulled herself bald on a couple of occasions and was on antibiotics both times.  Antibiotics would clear up any diarrhea that she was having but she'd always lose some hair in the process.  She's 6 now and we haven't noticed this problem in several years.  Of course she hasn't been on antibiotics lately either.

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#6 2008-02-04 10:28:15

maliscute
New member
Posts: 1

Re: hair twisting

Hello:

My son is 10 years old. He does not pull his hair, yet, it seems many of our children has some issue. Actually, autistic or not---we all have issues. I would hug my child and it would help---I'd just hold him/her and rub his back with much love. I did this often--three times a day for about 5-10 minutes.

Your child is the great--keep trying!

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#7 2008-04-10 23:05:31

OneThirdGA
New member
Posts: 5

Re: hair twisting

I believe it is called trichotillomania, and it is a stim.  It is actually a "obsessive-compulsive disorder" from the DSM-IV.  A lot of our kids have symptoms of ADHD, anxiety, and obsessive/compulsive disorders - basically, I think this "comprises" what is autism at times.  Sometimes meds bring out these tics (like Adderall will bring out tics like this - picking, hair-pulling, fear of germs, etc. in certain people - other ADD meds can bring out tics...) - some people just develop them.  When my older guy was little, he used to flutter his eyes as a stim, almost like a movie projector.  It eventually stopped.  My roomie in college was a hair puller, especially when she was writing, which was what she wanted to do for her livelihood...she used to wear a ball-cap while she wrote to keep from pulling her hair.  Maybe cute hats would help?  Also, my little sister went through a hair twisting phase as a toddler that did go away - she would twist and twirl when tired before sleeping....  some stims do go away. 

My younger son (moderat ASD) was obsessed with clothing tags - and nearly took my very large underwear into Wal-Mart with him one day in order to have a "tag" at his dispoasal to flick.  Thankfully, I caught him with the panties...  and thankfully, he has quit that obsession.  Hopefully, this too shall pass...

Good luck!

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#8 2008-04-13 09:55:42

Jake9068
Member
Posts: 78

Re: hair twisting

My NT son twisted hair.  It was comforting for him.  As he got older it only happened if he was tired or asleep.  I also believed it came from nursing him as an infant.  At the time, I had very long hair and it fell over home as he nursed.  I think it made him associate hair
with a pleasant, calming experience.  He also had a knot in the back of his hair for years. He was also a hard, core thumb sucker.  Both habits have gone away now.

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#9 2008-04-15 11:35:44

Theresakb
New member
Posts: 1

Re: hair twisting

My 16 year old daughter has done this on and off for years.  She pulls it out and eats it until there is only a bald patch left.  It is trichotillomania, a self stim, but it can be caused by a lack of certain vitamins in your diet also.  I can't remember which one she was missing(it was a couple of years ago and I've slept since then) but after placing her on a supplement she slowly stopped the behavior.  I'd talk to your doctor about it.

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#10 2008-07-08 15:32:08

autamom
Member
Posts: 13

Re: hair twisting

Our youngest (4) likes to chew on my hair and his babysitter's hair.  He has also been known to pull hair out of my head when he's mad.  Would this still qualify as trichtillomania?

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#11 2008-07-09 08:30:32

fjhurst2008
New member
Posts: 4

Re: hair twisting

I would vote YES on stim.  My daughter used to chew in her hair, which is a lot easier to remedy that pulling out for sure, but she quit when we took her out of daycare that was making her a nervous wreck.  She was chewing on hair and shirt collar like no body's business.

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#12 2008-07-10 09:17:53

LisaAutismAdvocate
Member
Posts: 111

Re: hair twisting

My son Loves HAIR!!! He doesnt pull it out...but he does the twist thing...mostly to other peoples hair...especially long hair...and he likes to smell it....I always said he would make a good salesman for the....Gee your Hair Smells Terrific, Commercials. LOL
It is a form of Stimming....and some things that might help, is to replace the behavior with Strings, paper, Dangling stuffed or play snakes...anything that dangles my son loves...His favorite toy right now consists of a Swim noodle, tape and toilet paper...lol...and it looks like a fishing pole.....anything that dangles. There is a  girl at our church and she loves to twist and spin Kush balls.....that might be similar to the twisting and pulling he is doing with his own hair. Hang in there!

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#13 2008-08-06 08:57:34

Pepperpots
Member
Posts: 11

Re: hair twisting

I am a hair twister.   I don't pull it out, just "twirl" it, as my mother used to call it.
I am also possibly undiagnosed Asperger's.  My son has been diagnosed with it. I share a lot of traits, and now that I know about it, Asperger's would explain a lot of my trouble in childhood and early adulthood.

I still use it and a few other stims when I've had a hard day, am stressed out, or just because. It is amazingly comforting, doesn't bother anyone really, although my family has always been annoyed by it.

I suppose pulling it out would be a different story.

I started it at about age 10, along with shoulder shrugging, tensing up my back muscles, rocking ( try to only do it in rocker or swivel chairs) and waggling a foot.   I'm now 40, so I've been doing it for 30 years.

I've had a lot of others, but these have stuck.

It is definitely a stim and I use it a lot.  I have tried to stop by cutting my hair very short, but when it grows back, I just do it again.  When I can't twirl, I rock or wag something.
It helps to keep my body moving.

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#14 2008-08-10 13:05:27

MOSES Mom
New member
Posts: 1

Re: hair twisting

This could be parasites. Eating ones hair falls under the category of pica, which can definitely be related to parasites. Kids with ASD have damaged immune systems and as such, their bodies can't keep at bay the parasites that we all come in contact with in our every day lives. You might be able to learn more about the parasite connection at homeopathyhouston.com. They have a page devoted to autism and also a handout about parasites (you might need to contact them for that). They are at the forefront of treating parasites in autism (which cannot be successfully eradicated with antibiotics). My own son made dramatic progress being treated for parasites there (we do long distance consults). --Lisa

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