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#1 2008-03-04 00:06:37

ppdnos1mom
New member
Posts: 5

Starting Potty Training

Jameson (PDD-NOS) will turn 2 this Wednesday.  We have not tried to start potty training because he had hypospadius and just had the surgery to fix his penis in February.  I was wondering if I could get some advice as to how to start potty training.....what has worked for other moms with children on the spectrum.  He has never been one to complain about being wet or soiled (I don't think this is going to help us) but seems to be aware now that he is wet or soiled.  Do you think this is an appropriate time to start the training process? 
Any suggestions, ideas, and advice would be greatly appreciated.

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#2 2008-03-04 18:35:35

cjkellie
Member
Posts: 25

Re: Starting Potty Training

Consistency and rewards!!!!  If you are going to do it stick to your guns!!!  Also I found that pull ups don't work except at night lol.  My son couldn't tell when he had gone so needed to be able to feel it and yes it was messy to begin with but he soon found out how to recognize when he had to pee lol.  Now BM's was a whole different ballgame.  I tracked them in a daily log to see when they were happening and tried to get the him to the potty during those target times lol!!! For my son it was in the evening time. He used to be a smearer so I was so thankful when he was trained.  We also used skittles for rewards.  For sitting on the potty he got one, for performing he got 2.  This really worked lol!!! Good luck

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#3 2008-03-05 07:38:12

shannonj
Member
Posts: 308

Re: Starting Potty Training

My son didn't potty train until late into his third year.  He just had no clue....By then, we had an in-home ABA program that was staffed with well trained folks who used the Potty Training in a Day method--which shocked me at how well it worked.  Basically, we spent the whole day in the bathroom--all the adults taking turns being there with him, and giving him lots of reinforcers for sitting on the potty.  We read books, sang songs, played games--even brought the tv in for some Sesame Street....And also kept pitchers of his favorite juices and let him drink, drink, drink.....Then, when he  did pee--big, big praise.  Then back on the potty.  By the end of the day, he was leaving the potty for 30 minute breaks etc...and stretched it out over next few days to longer and longer breaks from the potty.  Then, for several weeks, we kept him on a schedule of taking him to the bathroom once every hour....then stretched that out---and eventually, he began to catch on and ask to go.  But that part took (we figure) hundreds of times of us taking him on a schedule.  Really, it was months before he went on his own without our reminders--so the responsibility, for a chunk of time, was totally on us to make it work.  I remember one morning, we were laying in bed, and we heard his little pitter patter of feet get out of bed, walk to the potty and pee totally unprompted.  We were amazed that he had finally picked up on it and knew that everything in life was just going to get better from there!
Here is a link to some books that teach the potty in a day method:
http://www.amazon.com/s/ref=nb_ss_gw/10 … =0&y=0

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#4 2008-03-08 01:48:34

Calliesmom
New member
Posts: 5

Re: Starting Potty Training

keep in mind the average age for autistic children to potty train is 6-7 yrs...so dont quit trying, but never force the issue..I learned this one the hard way....God Bless

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#5 2008-03-08 08:44:39

slhh130
Member
Posts: 123

Re: Starting Potty Training

I had to take him out of pull ups this year but he is four. He had no idea until last fall. He pees in the potty but not poo. They really have to be ready.

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#6 2008-03-13 07:55:02

carmel66
Member
Posts: 46

Re: Starting Potty Training

You are brave to start so early. We had to wait b/c my son was not strong enough to walk until almost four. Then he had no language to discuss this issue. So by 5.5 years old we had him potty trained for pee. It took six weeks - similar to the ABA method shannon described. Lots of help at school, lots of help at home. My son can really HOLD IT. He had HOLDING IT in figured out in one week - the other five were training him how to release on demand. Now we are working on remaining stomach issues so he can learn to go poop on the potty - My three year old daughter is doing the same thing right now. So it's just one big poop and pee party here. BTW - my daughter was ready last year for potty training - but I was not. I couldn't handle training two at the same time. So she waited a year and now is very independant in the bathroom. And her being in diapers another year wasn't going to kill me.
Just get help to set up a program, be very consistant, be ready to stay at it for a long time - and abandon it if it's just too much right now.
Keep us posted. Cathy

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#7 2008-03-19 01:16:38

frogfoot1969
Member
Posts: 132

Re: Starting Potty Training

I just read a really good book called Toilet training for individuals with Autism or other Developmental issues by Maria Wheeler, M.ED. I haven't tried it yet but plan on starting again. My ds is 3.5. I am trying to find a good visual schedule to use, anyone have one they would like to share?? Another place I got good info is http://www.classbrain.com/artread/publi … e_20.shtml  I had also recently found out that Medicaid will cover some diapers for children with developmental disabilies after the age of three. We are goin to get our first shipment this week from a medical supply company and they will file w/ ins. You can't use the Autism diagnosis you have to use Developmental delay w/ incontinence (I think). We are getting half diapers half pullups.
Sonya

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#8 2008-04-11 03:58:08

OneThirdGA
New member
Posts: 5

Re: Starting Potty Training

The book mentioned is a good one.  I purchased it years ago.  My 7 1/2 year old moderate ASD guy still will not poo on the potty...  It is a dream I have that some day, I will not be cleaning up booty.  (I have been doing so since 1998 - which is sort of like have 5-6 children...)  He will not sit on the potty for more than a few minutes either.  But enough about me!

A few tips... My husband is a band director and he has this advice for getting your guy to poo - wait until 30-45 minutes after he eats and provide a juice at the meal (we got that advice from the Emory Autism Center, not my husband the band director), but here is the band director's advice - give the kid a kazoo and kazoo with him!  The kazoo requires you to press with your sphinctor muscles and it will help the child eliminate...  Any kazoo will do - doesn't have to be an expensive one from a music store...  So, kazoo your favorite songs and hopefully the poo will come along.  Then have a reward handy for a job well done!

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#9 2008-04-24 22:04:42

Anamcara
Member
Posts: 17

Re: Starting Potty Training

Age 2 is awfully early to start, but not too early to start him thinking about the process.  You can use social stories to read to him that will help him in that direction.  We're in process now, and Mr. B. is 4.  We've had some periods where he simply made the decision to go in the potty for a week (peeing) and then no longer wanted to do it and I didn't pursue it until recently because of surgeries and a cross-country move that were stress enough.  We're back to it now and using a combination of social story charts that show step-by-step the process coupled with a rewards system.  We have 3 different laminated story charts posted in the bathroom - one for Number 1 (peeing), one for Number 2 (pooping) posted where he can see them sitting on the toilet, and one for step-by-step handwashing that is posted over the sink.  We have a rewards chart which shows the reward and 6 spaces for an "I did it sticker" before earning the reward.  You can find some of these tools on ebay - that's where I found mine, as well as several social stories online in various places.

Also, remember that peeing is much easier to master than pooping for any child whether ASD or not, primarily because of the psychology involved ('if it's solid, it's part of me'), so that will take longer to get a handle on. 

Being a musically-inclined family, I like the kazoo idea and think we'll try it and see what happens!  We can always use it for the accompaniment to the "potty dance" that gets done at our house when he succeeds.

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#10 2008-06-16 20:06:14

PeterPan
Member
Posts: 10

Re: Starting Potty Training

It is taking us 2+ years with our son.  We started at the age of 3, he is now 5 and has it all down except the cleanup after the Number 2 (pooping).  We still use the baby monitor at night time and we actually get so excited when we hear him get up out of bed, walk down the hall, pees, flushes the toilet and washes his hands.  We both turn and smile at each other.  He usually comes to our bed afterwards, and we flip on the Playhouse Disney on the tv for him.  This is only on weekend of course, during the week we have to wake him up for school.

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