Hello?? Introduction Round!
By sensational
01-26-08
Hi! I figured maybe I'd post a hello and get some folks to come out of the woodwork around here!
We are still waiting on an official autism dx... our neurologist won't do it without a developmental psychologist's testing, and says The Boy is too young for that (2yo). But all of our discussions, planning, etc., focus on that dx.
Autism, I expected. But I'd never heard of sensory processing dysfunctions before, and was thrown in circles a bit when it was first mentioned (by an Early Intervention evaluator/OT that did our intake assessment). Then the neuro really, really honed in on the sensory issues, not just with The Boy, but with everyone in our family to some degree. It's been a big eye-opener, and I'm really just starting to come to terms.
We're just barely starting out on this journey, and looking to find people with similar issues and points of focus. I feel like the ugly stepchild in a lot of autism communities and forums because we're looking at early-onset autism, as opposed to regressive, and sensory as opposed to some sort of... well, the 5 million other hypotheses up for grabs for causes.
Anyway... throw me some introductions, and let's get some discussion going!
We are still waiting on an official autism dx... our neurologist won't do it without a developmental psychologist's testing, and says The Boy is too young for that (2yo). But all of our discussions, planning, etc., focus on that dx.
Autism, I expected. But I'd never heard of sensory processing dysfunctions before, and was thrown in circles a bit when it was first mentioned (by an Early Intervention evaluator/OT that did our intake assessment). Then the neuro really, really honed in on the sensory issues, not just with The Boy, but with everyone in our family to some degree. It's been a big eye-opener, and I'm really just starting to come to terms.
We're just barely starting out on this journey, and looking to find people with similar issues and points of focus. I feel like the ugly stepchild in a lot of autism communities and forums because we're looking at early-onset autism, as opposed to regressive, and sensory as opposed to some sort of... well, the 5 million other hypotheses up for grabs for causes.
Anyway... throw me some introductions, and let's get some discussion going!
Messages posted for this Topic
Intro
By okmom23
01-30-08
Hi,
My DD is 18 yrs. old now. She was dx with "PDD" on the autism spectrum when she was 10. I tried to get her dx way before then as I KNEW something was different with DD. When I brought her home from the hospital, I noticed the sensory issues right away. We went through 7 pediatricians before she got a referral to a large teaching hospital for an eval. She wasn't cuddly, couldn't sleep for longer than 2 hrs., lights and noises bothered her, etc., etc. Finally, at age 10 she received occupational therapy, speech and language therapy, and physical therapy. These modules really helped her, and I wouls suggest EARLY INTERVENTION to any Mom that has that :gut feeling" that something is not quite right. The OT is especially helpful, with clothing suggestiions, feeding/food preferences, and any vision problems that may be blooming. My DD was 20/20 in both eyes in Kindergarten, but by Second grade she had begun some myopia. I think it is very important to be one step ahead in all of the categories, physical & emotional. This should make your life easier-no surprizes!
My DD is 18 yrs. old now. She was dx with "PDD" on the autism spectrum when she was 10. I tried to get her dx way before then as I KNEW something was different with DD. When I brought her home from the hospital, I noticed the sensory issues right away. We went through 7 pediatricians before she got a referral to a large teaching hospital for an eval. She wasn't cuddly, couldn't sleep for longer than 2 hrs., lights and noises bothered her, etc., etc. Finally, at age 10 she received occupational therapy, speech and language therapy, and physical therapy. These modules really helped her, and I wouls suggest EARLY INTERVENTION to any Mom that has that :gut feeling" that something is not quite right. The OT is especially helpful, with clothing suggestiions, feeding/food preferences, and any vision problems that may be blooming. My DD was 20/20 in both eyes in Kindergarten, but by Second grade she had begun some myopia. I think it is very important to be one step ahead in all of the categories, physical & emotional. This should make your life easier-no surprizes!
Shot related? NOT.
01-27-08
We noticed a difference in our daughter when she was born. When she startd walking then my world REALLY changed. Just keeping up with her all day long, keeping her safe, dealing with her meltdowns,not wanting to be held or kissed, no eye-contact,aggressive,not playing with toys, ect.. She has been immunized BUT my opinion is it had nothing to do with her differences. We deal with so many issues right now and many of them are sensory related. Such as she must smell everything she comes in contact with.She has extremely high tolerance for pain.She refuses to try new foods based on smell or texture. She doesn't like large crowds. She is afraid of wheelchairs and crutches. Can't figure that one out! :) She can hear things such as train even if I can't. She loves water in any form. When she gets in bed with us she wants to root up under our body for that deep pressure.(Yes, drives me CrAzY at times!)
