State: CA
Country: USA
Member since: Jan 06, 2008
Last logged in: Nov 19, 2008
Hi,
My name is Diana, I have one daughter (27) and four boys (22) (14) (13) and (9). I have 1 grand-daughter in heaven and four grand-sons (7) (4) (1) and (2). I have been happily married for 14 years and 12 of them have been with the challenges of autism, and year 15 is this May. I used to hold support meetings for parents here in Madera, I did this for 4 1/2 years...But do to the lack of parental interest in recovering these children, In July of 2007, I stopped the support group...I still provide resources when the local agencies ask for them. Now we try and do as many family outings as possible. I homeschool Julian, and I am his teacher, doctor, nurse, one on one aide, and therapist for everything.
As long as God gives be breath, I will continue to keep looking under every stone, and move as many mountains as possible to help Julian recover, and be all GOD intended him to be. May GOD's glory shine through Julian for the world to see. amen y amen.
Favorite Compositions (51)
I live in a land of freedomA land of many blessings.
I am told that you defen...Read more
By 4muskateers on 01.01.70
Comments(10) What is something you would like to talk about?
easy to talk to you mama
i l...Read more
By Seth on 01.01.70
Comments(4)
My Prayer
By Seth McKinley
lord
great things are possible if we trus...Read more
By Seth on 01.01.70
Comments(8) Just a little background
When Seth and I set down to type this is what he wr...Read more
By Seth on 01.01.70
Comments(8) pitying the disabled
lots of people are berating of less than
perfect individ...Read more
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Comments(6)
4muskateers's Compositions
by 4muskateers on 07.24.08 - public - 110 visits
When Julian was 6 I was up one night and watched Lorenzo's Oil...boy, was that momma a fighter...then when I went to Florida in 2003/04 I say it again...I came home and found it at Hollywood Video, and watched with Jesus...needless to say we were in tears and so were the kids...After that movie we knew we could never stop looking at ways to help Julian recover from his vaccine injuries...So if you think you can't handle autism...then you really need to watch Lorenz's oil...I was keeping up with Lorenzo's progress...it kept me going...in 2005 he was I want to say 26, and I was a picture of him in a pool with the same guy who helped care for him as a child/teen...his mother died of cancer at I believe 65 and he was living with his father and the guy who cares for him...maybe now thinking about it, I should check up on him again...after you watch this movie, you'll understand why I say I won't stop, I can't stop...Julian and your children keep me going.
Comments(5)
Robbiesmom
Posted on Tue, 5 Aug 2008
Lorenzo's Oil is one of my favorites. I haven't watched it since before I was pregnant with Robbie, I think i need to see it again, now that I have autsm in my life. It may just help me to see Robbie's autism in a whole new light.
te
Posted on Sat, 2 Aug 2008
One song that can still make me cry and also inspire me is "Candle on the water", from Pete's Dragon. I felt like this during his darkest autism years, like I was the one thing keeping the darkness away. I'll be your candle on the water My love for you will always burn I know you're lost and drifting But the clouds are lifting Don't give up you'll have somewhere to turn I'll be your candle on the water 'Till ev'ry wave is warm and bright My soul is there beside you Let this candle guide you Soon you'll see a golden stream of light A cold and friendless tide has found you Don't let the stormy darkness pull you down I'll paint a ray of hope around you Circling in the air Lighted by a prayer I'll be your candle on the water This flame inside of me will grow Keep holding on you'll make it Here's my hand so take it Look for me reaching out to show As sure as rivers flow I'll never let you go I'll never let you go I'll never let you go...
shannonj
Posted on Thu, 24 Jul 2008
Yes--I agree--wonderful, inspiring movie. Such brave parents who set an amazing example...and their efforts have benefited so many others...
4muskateers
Posted on Thu, 24 Jul 2008
Well, I went to check on Lorenzo's progress and I am very, very sad to say he has passed away...May/ 2008...But he did not die from his illness, he got a little peice of food in his lungs and that took his life...His dad is going back to Italy now and will be writing a book about Lorenzo's life, away to keep him alive...I believe Lorenzo was 38 yrs old...my biggest inspiration...because of him I learned a little on the meilyn sheath deterioration, and had Julian tested for demeilynation around the nerves in 2005.
