State: Maine
Country: USA
Member since: Jan 23, 2007
Last logged in: Mar 15, 2010
My name is Shannon and I have a great husband and 2 amazing kids.
My oldest, Wynn, age 14, has autism and still struggles, after all these years of treatments and therapies, with anxiety and aggression. At his best, he is funny, intuitive and sensitive.
My daughter, 13 year old Haley, is strong and independent, creative and musical. She has been a shining example for Wynn and taught him many of his first words and skills by sheer example.
Steve is my husband of 20 years and partner in this endeavor to be a family in this crazy world of autism. Out of a need we had to have better communication with Wynn's team members, he created a web application called iAbida.com. It has been a project from his heart, and he makes it available to all families, around the globe, for free.
And me? In spite of being a terrible klutz, I have learned the fine art of juggling....motherhood, advocacy, household management and working from home. Foggyrock is my latest project--to fulfill my own need to be associated with other fantastic folks, like you, who I knew were out there.....Thank you for allowing me into your life through this community.
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shannonj's Compositions
by shannonj on 01.28.10 - public - 183 visits
I just sent an email to the director of my son's school program. We email back and forth a lot and she is a great listener. Recently, after I received a form from the school district asking for a check for this year's high school yearbook, I emailed her and asked if there was any way we could put together a yearbook for Wynn, and the three other boys in his program--something that would actually have pictures of them in it, doing meaningful things, going to meaningful places.....something that my son could use to help him process each school year and document that he was truly in it. She said yes. Right away, she said yes. And last week she emailed me a photo of Wynn bowling in black and white bowling shoes. I hope that one makes it in the yearbook. Somehow I think it will.
Yesterday, Wynn and I and one of his teachers took a road trip to see his doctor. On one stretch of highway, Wynn caught sight of a dead raccoon. He doesn't notice when his zipper is down, or that he has spaghetti sauce on his face or that his toenails are 3 inches long, but he never misses a dead animal on the side of the road. The rest of the drive back to school, Wynn wondered aloud about that raccoon. How did he get there? Was he dead or alive? Do dead animals make good pets? and on and on.
He continued his perseveration on that darn raccoon after school as well. It evolved from wanting to call the police to rescue the raccoon (even though I explained that a dead raccoon is beyond rescue) to a detailed plan to steal a police hat, borrow my car, pick up a friend, rescue the animal himself and then bury in the ocean for a whale or shark or such at eat for dinner.
And somewhere in the middle of this breathless conversation between himself and his delusions, he said something that broke my heart. "I'm never going to drive a car, am I?" he asked. He'll be 15 next month and he can't read. But still, he'll be 15 next month, and the other part of him that has a deepening voice and light-colored whiskers above his upper lip, wants to do what every teenage boy wants to do and it has nothing to do with his report card and everything to do with motors and speed and skidmarks.
Every boy deserves a chance to sit behind a wheel of something bigger and stronger than himself, and so I sent an email to his teacher. It mentioned, among other suggestions, the idea that Wynn might be interested in driver's ed---an adaptive version, to be sure, but something that would (please) help keep my son's dream alive.
Am I crazy?
Comments(13)
kat630
Posted on Mon, 1 Feb 2010
You are not crazy just a thoughtful, concerned Mom.We all want our kids to do so called normal things that some may take for granted. Sometimes I watch Michelle when she is enjoying something and I realize that I take simple pleasures for granted.Good luck with this one, you might get really creative.
striving
Posted on Sat, 30 Jan 2010
What a great mom you are, thinking of him at every opportunity, your heart is all for him, that's for sure
LifeCoachLaura
Posted on Fri, 29 Jan 2010
Harrison is 11 and has started having the driving itch already. He likes to sit behind the wheel and will sometimes get into the driver's side when we go somewhere. I have to tell him, "Sorry, you aren't driving home today." I used to leave my keys in the ignition in the garage, but not anymore.
jewelryjenny
Posted on Fri, 29 Jan 2010
Wow. I feel like I don't have anything to contribute, since my son is 4, but I wanted to acknowledge your post. It broke my heart, too. I hope some of these suggestions help Wynn drive some day!
shannonj
Posted on Fri, 29 Jan 2010
Thanks, you guys! Such encouragement from my friends. Haven't heard back from the teacher yet, though : )
mamason
Posted on Fri, 29 Jan 2010
i think you are wonderful for giving wynn every opportunity to be a "regular" kid. that takes strength and a whole lot of bravery. :)
KevinLivsDad
Posted on Thu, 28 Jan 2010
Shannon I think your crazy... However, I am not there yet... I will probably think crazy too ;) And, when I put myself in your shoes now, I just hope Liv will be able to ask the question itself. **sigh** The note did touch me & force me to look ahead more than a day.
coffeemom4
Posted on Thu, 28 Jan 2010
:) hugs, and a shoulder ta is quite water proof, my son has spoken of wanting to be a father , he has three younger siblings, driving, jobs that most would consider beyond his cognitve abilities when it comes to cause and outcome.. none of that means anything to him, he wants a sweet cherried out (braincrash) blue white stripe from nose to tail older muscle car... a dodge charger? I could be waaaay off anyhow, no one or thing should take the dream... they have the same desires and hopes, it is the cruel realization that is the sucker punch to them and us on the sidelines. Maybe driving ovculd be ok at a friend's ranch..? or large propertybut then in the logic I am used to if that was ok then the open road would be considered ok... each decision can have pitfalls or huge victories.. you have my best
mercurymom
Posted on Thu, 28 Jan 2010
Rules of the road are difficult...does not mean he will not be able to understand them and drive some day. John sits in his jeep behind the wheel and pretends...I know he longs to drive..I doubt he ever will...but you never know...you really never stop trying until you are dead...
carmel66
Posted on Thu, 28 Jan 2010
No - you are not. I like Motherof4's ideas. Keep fighting to make sure he remembers he is of this world. I wonder about this too - my son wants to live in NYC, have a job driving the subway, get a green car to drive, have a girlfriend... and we talk about the steps necessary to do those things...potty on his own, sleeping in his own bed, going to school everyday...but I worry...am I crazy for building these hopes up in him? The answer is always NO
militantmom
Posted on Thu, 28 Jan 2010
No, Shannon. You're not crazy. Each and every day we are soldiers armed with determination, patience and perseverence that never stops us from helping our boys achieve anything and everything! Militantmom
JessicaJIrish
Posted on Thu, 28 Jan 2010
Hey Shannon, How about getting an old beater and letting him do the Topsham Fair Demolition Derby? :) Now that would be CRAZY!!! But oh so fun!! Might want to start him on some driving video games so that he could focus on staying between the lines....and such.
Motherof4
Posted on Thu, 28 Jan 2010
No, Shannon. You're not crazy. Some people on the spectrum do learn to drive. We have Daniel practice on go-carts! When we see that he can control one of those without help, then we'll talk about his driving an actual car. If Wynn can ride a bike, he might be able to drive one day.







